The Numbers.
The number of people affected by autoimmune diseases is staggering and the human suffering is immeasurable.
- The American Autoimmune Related Diseases Association (AARDA) estimates that approximately 50 million Americans suffer from autoimmune diseases
- Estimated 75% of those affected in the US are women
- About 25% of patients with an autoimmune condition may develop additional autoimmune diseases
- The AARDA’s autoimmune disease conditions count stands at 100+
The Lifestyle.
Why is autoimmune disease so pervasive?
Much research has been and continues to be dedicated to understanding the causes for autoimmune disease. While there is no single cause, studies indicate that environmental and lifestyle factors, such as stress, diet, smoking, infection, medicine, exposure to chemicals, vitamin D deficiency, may play an important role in triggering autoimmune diseases.
There is no known cure for these diseases. However modifying lifestyle factors to better manage autoimmune symptoms and improve overall health is within reach. Here are a few suggestions:
- Focus on clean, nutritious, chemical-free diet
- Reduce or, if possible, eliminate stress
- Get high-quality sleep every night
- Exercise regularly to the extent you can (without overtaxing your body)
Frequently Asked Questions.
What is an autoimmune disease?
Western medicine defines it as a disease in which the body’s immune system mistakenly attacks its own healthy cells and tissues. Some of the common autoimmune diseases include lupus, rheumatoid arthritis, multiple sclerosis, Type 1 diabetes, inflammatory bowel disease, psoriasis, Graves’ disease, Hashimoto’s thyroiditis, schleroderma, Sjögren’s syndrome, celiac disease.
Each autoimmune disease has its own set of symptoms.
Is autoimmune disease the same as Acquired Immune Deficiency Syndrome (AIDS)?
No. Even though both conditions involve the immune system, they are not the same. In autoimmune disease, the immune system is believed to be too strong (overactive) and begins to attack the body’s own cells, tissues and organs. In AIDS, which is the most advanced state of HIV infection, the immune system is too weak and can no longer protect the body on its own. Also, AIDS is contagious, autoimmune disease is not.
I have just been diagnosed with autoimmune. What do I do next?
Do not panic. Educate yourself about the disease using credible sources. Ask your physician about your treatment options, then carefully evaluate each option and make an informed decision.
Even though there are no known cures for autoimmune diseases, you have treatment options; it’s just a matter of you deciding which one is right for you!
I have been diagnosed with autoimmune, but was not given a clear-cut diagnosis. How do I choose a treatment plan if I do not have a definitive diagnosis?
Autoimmune diseases are complex and may be difficult to diagnose. You may experience symptoms such as fatigue, low-grade fever, swelling, trouble concentrating, shared by various autoimmune diseases, so putting a specific label on yours may not happen immediately.
Partner with a medical professional you can trust who will listen and help in putting the pieces together to identify your specific condition. In the meantime, your doctor’s suggested treatment plan may be to address the symptoms you are currently experiencing.
What if my lab test results do not support my diagnosis?
Even if your test results come back negative, in case of a common and well-described disease, such as rheumatoid arthritis, your diagnosis maybe based on physical presentation, e.g. swollen joints. Also, at the onset of the condition, the test may not show presence of the disease.
Why me?
Much research has been and continues to be dedicated to understanding the causes for autoimmune disease. While there is no single cause, research indicates that several factors may trigger an autoimmune disease.
These may include one or a combination of the following factors: genetic, hormonal, environmental (e.g. stress, diet, smoking, infection, medicine, exposure to chemicals, vitamin D deficiency).
What can I do to help myself?
While there are currently no known cures for autoimmune diseases, making lifestyle adjustments may help manage symptoms and feel better.
These may include some or all of the following self-care practices: reducing or eliminating stress, exercising to the extent that you can, getting good sleep, eating healthy, meditating, doing something meaningful in your day.
Is my life ever going to be the same?
Your life will change, but if you can manage your symptoms, you may still have a fulfilling and full life. Be realistic about what you can and cannot do and prepare yourself for the ups and downs of living with a chronic condition. Some days you may feel great, while other days maybe very challenging.
You will need to be patient with yourself, listen to your body and slow down when it feels overburdened. Be kind to yourself and remember to love your body even when it is aching and not feeling its best.
Resources.
If you or a loved one has been diagnosed with autoimmune, it is important that you educate yourself about the disease and find the needed resources to cope with the challenges ahead. The FAQs above and the list of resources below may provide a good starting point.
- American Autoimmune Related Diseases Association Patient Resource Page
- Autoimmune Registry List of Diseases
- The John Hopkins Autoimmune Disease Research Center
- Autoimmune Disease 101
- Smart Patients Autoimmune Support Group
Please note that the links above are being provided as a convenience and for general informational purposes only; we are not responsible for the accuracy, legality or content of these links. Please contact the external sites for answers to questions regarding its content.